A Little About Lily

My name is Lily and I’m a little girl who tends to have a lot of adventures! I’ve been adopted and live with my 2 moms (Mama C and Mommy), a cat (who doesn’t seem to love me as much as I love her). I have something called Down Syndrome and have spent quite a bit of time in the hospital because I’ve have something called an AVSD (which is not unusual for kids with Down Syndrome). When I was just 7 months old, I had a cardiac arrest at home with the mom’s and that’s caused some problems with my eyesight and some seizures. Most recently, I was diagnosed with something called Pulmonary Vein Stenosis, which is pretty rare and can be pretty scary, but luckily I have some really great doctors and nurses who are helping me grow big and strong.

This blog is just a place for me to tell you all about my life and my adventures. Sometimes I let Mama C post too (because she’s a grown-up and apparently I have to listen to her) and she also likes to post a lot of pictures. Luckily, I’ve heard that the extra chromosome that comes with Down Syndrome also causes cuteness, so I think you’re in for a treat.



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